Juggling Care Coordination For Yourself or a Loved One? How to Save Time and Trouble

When you have a complicated medical condition, keeping track of all the doctors’ appointments, tests, medications, prescription renewals, insurance questions and myriad other details can feel like a full-time job. Managing your own care on top of doing your best to battle fatigue, pain and a raft of other symptoms can be downright exhausting. Managing a loved one’s care can be exhausting, too.

Not everyone can afford an Aging Life Care™ Manager to take the load off. Here are some key strategies, based on our years of experience, that can help you to keep better track of all the moving parts.

One of the most time-consuming aspects of managing a complex disease is dealing with a variety of medical specialists. They may be part of the same healthcare system or different systems; if the latter is true, more time is involved with sharing medical records and insuring that the specialists communicate with each other. A few tips:

  • Create an easy note-taking system that enables you to keep track of what was said in each appointment, relevant test results, and any other observations you want to share with the physician. You may want to keep a notebook or maintain your record electronically on a smart phone or tablet. Explore apps such as CareSync or CareZone that streamline personal health record-keeping. This will help you to manage important details between and across specialists’ appointments.
  • Make sure that all healthcare consents are in place so that the specialists can consult with each other. Without permission, especially across systems, they will not be able to share confidential medical information.
  • Have someone accompany the patient who also knows his or her medical story and is good with details. This might be you, another family member, or a friend. If you are the patient, and you’re having difficulty keeping track of all the details, then bring someone along who can fill in the blanks.
  • Bring a written summary of the patient’s relevant medical history along to appointments with specialists, especially if they are new to the case. This will save everyone time, and allow you to think ahead about key details that must be mentioned. When creating the narrative, keep these points in mind:
    • You only need a concise summary of the medical history; don’t write a full biography. The past six months to a year of details will be enough. Confine the rest of the past history to one paragraph.
    • Include a list of medications that have worked and those that have not.
    • List the other doctors that the patient has seen.
    • List previous relevant treatments and outcomes.
    • Bring a list of questions that you want answered. Be sure you get the answers before you leave!
  • If possible, when there are many specialists involved and important decisions to be made, request a group meeting. This may be easier to accomplish when all the specialists are in the same healthcare system. In any case, it does not hurt to ask. You must be your own best healthcare advocate.

If you are feeling overwhelmed by all of this, and hiring an Aging Life Care Manager exceeds your budget, consider one other option: a consultation with an Aging Life Care Manager can help you, your loved one and family to sharpen your care coordination skills and identify community support services that may be affordable or even free.

And be sure to do your own cost-benefit analysis; especially if you are taking time off from work in order to provide care management for a loved one, and losing income as a result, you may just find that hiring a professional will save you money, time and much stress in the long run.

President of Deborah Fins Associates, PC , since 1995, Deborah Liss Fins is a licensed independent clinical social worker and certified Aging Life Care™ manager. Drawing on more than 30 years of professional experience in aging life care management, DFA offers comprehensive assessments and planning, guidance in selecting appropriate care, help identifying resources for financial support and professional consulting. Please contact us to set up a complimentary initial telephone consultation.

For more on coping with aging, follow us on Twitter: @DeborahFinsALCM.

Image Credit: Chilanga Cement Flickr via Compfight cc

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Assisted Living Tips Plus Two Events You Won’t Want to Miss

We’re entering a busy fall season here at Deborah Fins Associates. Debbie was quoted in two articles in Consumer Reports that focus on how to make wise decisions for your loved one when considering assisted living:

Putting the Assisted Living Facility Contract under a Microscope
Elder Care and Assisted Living: Who Will Care for You?

And be sure to put these two informative events on your calendar for October and November:

To register for the MOLST workshop, download the PDF here .

President of Deborah Fins Associates, PC , since 1995, Deborah Liss Fins is a licensed independent clinical social worker and certified Aging Life Care™ manager. Drawing on more than 30 years of professional experience in aging life care management, DFA offers comprehensive assessments and planning, guidance in selecting appropriate care, help identifying resources for financial support and professional consulting. Please contact us to set up a complimentary initial telephone consultation.

For more on coping with aging, follow us on Twitter: @DeborahFinsALCM.

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Riding the Health Care Rollercoaster: How to Keep Your Balance and Plan Ahead

As of last Friday, the GOP push to repeal and replace Obamacare (officially, the Affordable Care Act) died in the Senate when three Republicans — Susan Collins of Maine, Lisa Murkowski of Alaska and John McCain of Arizona — joined with Senate Democrats to block a stripped-down version of legislation from going to conference committee with members of the House of Representatives.

At least, it seemed as if Senate Majority Leader Mitch McConnell’s efforts to push through repeal and replace legislation were finally over, with McCain’s dramatic thumb’s down vote in the wee hours of Friday morning. But reporters have taken to calling this the Zombie Bill, because it keeps rising in a new form when everyone has written its obituary.

Sure enough, on Saturday, President Trump took to Twitter to threaten Republicans with loss of government subsidies to Congressional health insurance coverage if they didn’t keep trying: “If a new HealthCare Bill is not approved quickly, BAILOUTS for Insurance Companies and BAILOUTS for Members of Congress will end very soon!” he tweeted.

Medicaid Cuts Off the Table — For Now

While it’s not clear what impact that threat will have on Republican leadership, it is clear that the health care insurance exchanges are in for more rocky pricing and the risk of insurers dropping out of the marketplace. Uncertainty breeds higher costs. The President has threatened to allow Obamacare to die on the vine, starved of federal subsidies that make insurance premiums affordable for lower income citizens.

For now, however, it appears that significant cuts to Medicaid over the next decade, a central point of contention in the bill, have been taken off the chopping block. That is a major victory for disability advocates, who protested fiercely on behalf of the millions who depend on Medicaid for home- and community-based care to remain independent. Medicaid also covers nursing home care, rural health clinics, services for pregnant women, inpatient and outpatient hospital care, and more for individuals who meet financial and clinical needs criteria in each state.

Massachusetts Struggles with Rising MassHealth Costs

Here in Massachusetts, about 1.9 million people are covered by Medicaid, known as MassHealth. Enrollment has increased in recent years due to expanded eligibility under Obamacare. In fiscal year 2015, 30 percent of the Commonwealth’s $15.6 billion in Medicaid spending went to long-term care.

Rising costs for MassHealth have become a stumbling block in finalizing the fiscal year 2018 budget. Governor Charlie Baker is wrestling with state legislators over how to pay for rising MassHealth costs and whether to institute tougher eligibility rules.

How to Plan Ahead in the Midst of Uncertainty

So, what’s next? How can you plan ahead for long-term care for a loved one or even yourself in such a volatile political climate?

Our best advice is to team up with a good elder law attorney . These are legal experts who have extensive experience with issues affecting us as we age and for those with disabilities. Answering questions about eligibility, unraveling issues with getting benefits, negotiating Byzantine rules and regulations — all this and more are their specialties. An excellent resource is the National Association of Elder Law Attorneys . Membership indicates a commitment to the field. The initials CELA refer to Certified Elder Law Attorney.

It’s also worth speaking with a financial adviser to help you create a realistic, comprehensive plan for the future. The Certified Financial Planner Board of Standards, Inc. , website is a good resource for finding a trustworthy fiduciary adviser.

As with any decision about hiring a professional consultant, get referrals and research pricing to be sure you can stay within your budget. At the same time, remember that an investment in a good elder law attorney and financial adviser may save you a considerable sum down the road — not to mention, provide you with much-needed peace of mind.

President of Deborah Fins Associates, PC , since 1995, Deborah Liss Fins is a licensed independent clinical social worker and certified Aging Life Care™ manager. Drawing on more than 30 years of professional experience in aging life care management, DFA offers comprehensive assessments and planning, guidance in selecting appropriate care, help identifying resources for financial support and professional consulting. Please contact us to set up a complimentary initial telephone consultation.

For more on coping with aging, follow us on Twitter: @DeborahFinsALCM.

Image Credit: Charlotte Coneybeer

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On Creating Dementia-Friendly Communities

By now, we are all far too familiar with that ubiquitous announcement in airports and train stations: “If you see something, say something.” Of course, we’re all supposed to be on the lookout for suspicious, dangerous behaviors among our fellow travelers.

But that phrase takes on a totally different significance when we are asked to be on the lookout for people at risk who need help. Specifically, how can we be of most help to our neighbors and other community members who are dealing with Alzheimer’s and other forms of dementia?

That’s the mission of the Dementia Friendly America® Initiative . A coalition that brings together nonprofits, medical professionals, community leaders and people living with dementia, the initiative promotes a four-step process at the local level to assess needs of people with dementia and how the community can respond to make basic services and resources more accessible.

Building a Dementia-Friendly Community

Currently, more than three dozen states are working to promote dementia-friendly communities, including Massachusetts. In Boston, Jewish Family & Children’s Services and the Department of Elder Affairs are leading an effort to promote this model statewide .

So, what does this effort involve?

The basic idea is to examine all the different sectors of a community to determine the best way that each could be more welcoming and supportive of people with dementia. For example, how can public signage be designed to make it easier for those with Alzheimer’s to find directions or public services, such as hospitals or the library? Or how can emergency responders be better trained to help people with cognitive impairments? How can bank tellers, librarians or store clerks learn to recognize the specific challenges faced by people with dementia and make their services more accessible? Sensitivity, planning and education can go a long way toward making a community more inclusive.

Making Restaurants More Inclusive

Purple Table is another creative approach to fostering dementia-friendly communities. Participating restaurants provide reserved tables in quiet corners that are well lit and close to restrooms for customers with Alzheimer’s and other forms of dementia, as well as those with autism, PTSD, hearing or vision impairments, or other conditions that require special accommodations. Staff are trained to provide extra attention and to show patience and kindness to these guests. In Central Massachusetts, to date, The Red Raven in Acton offers Purple Table reservations .

Religious communities can also play a very important leadership role in the effort to make communities dementia-friendly. Religious leaders are often aware of members in their community who are dealing with dementia. Home outreach, help with transportation, ensuring that religious spaces follow principles of universal design — all of this and more are ways to be sure that community members with cognitive impairments do not become isolated.

What Each of Us Can Do

And what about “see something, say something”? If each of us pays a little more attention to friends and neighbors who seem to be having a more difficult time managing day-to-day, offering a helping hand, contacting their family if needed (to the extent that this kind of communication is welcome), chances are we can make our own little corners of the world more inclusive and welcoming, too.

President of Deborah Fins Associates, PC , since 1995, Deborah Liss Fins is a licensed independent clinical social worker and certified Aging Life Care™ manager. Drawing on more than 30 years of professional experience in aging life care management, DFA offers comprehensive assessments and planning, guidance in selecting appropriate care, help identifying resources for financial support and professional consulting. Please contact us to set up a complimentary initial telephone consultation.

For more on coping with aging, follow us on Twitter: @DeborahFinsALCM.

Image Credit: Nina Strehl

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Brain Injuries from Falls Pose a Growing Threat for Older Adults: 7 Tips to Reduce Fall Risk

The older we get, the greater the risk of falling. Lost flexibility, diminished sense of balance, medications that cause dizziness or weakness, lack of attention, nerve damage to feet, chronic disease that takes a toll—any or all may contribute to a dangerous misstep.

A broken wrist, ankle or hip can be a major set-back for anyone; all the more so for a fragile older adult. But public health officials have identified another, growing risk for elders who fall: brain injury. According to a March report by the Centers for Disease Control, 2.8 million people suffered traumatic brain injuries (TBIs) in 2013 that resulted in emergency department visits, hospitalizations and deaths, with older adults accounting for the highest rate of TBIs—roughly one out of every fifty Americans aged 75 and older.

In addition, the CDC study found that the rate of hospitalizations for TBIs among these older adults jumped 27 percent between 2007 and 2013, “primarily because of falls.” Men across all age groups had a higher incidence of severe TBIs than women.

While the reasons for the increased rate of falls among older adults is unclear, the risks of brain injury for elders are significant. As we age, we shrink—including our brains. That process leaves more space between the brain and inside skull wall—a harder internal knock in case of a fall. Blood vessels connecting the brain and skull also get thinner and more easily damaged with age, increasing the possibility of a brain bruise, or subdural hematoma, which is effectively a slow leak. For those on blood thinners or anti-inflammatory medications, this kind of injury can morph into a severe health crisis . Moderate to severe TBIs also increase the risk of dementia significantly , anywhere from 2- to 4-fold.

While it’s impossible to prevent all falls, there are steps you can take to safeguard your loved one from unnecessary fall risk, as well as strengthen her odds (and yours!) of maintaining balance:

  1. Make surfaces safe. One of the easiest ways to minimize falls is to stabilize throw rugs with slip-proof backings or remove them altogether. If the rugs have sentimental value, consider creative repurposing, such as turning them into wall hangings. Use bathtub liners with suction cups. Mark outdoor steps with reflective tape. Add grab bars to toilets and showers, if needed. Be sure that stairs have sturdy railings.
  2. Wear well-fitting shoes and slippers. Loose slippers or house shoes may be more comfortable for elders struggling with bunions, neuropathy, arthritis or other forms of foot pain, but floppy foot-ware can also cause falls. An increasing number of shoe brands are now available with removable insoles for custom orthotics. A good podiatrist can provide essential foot care and recommendations for appropriate support.
  3. Understand medication side effects. Blood pressure meds can cause weakness or dizziness if your loved one stands suddenly. Pain meds can, too; they can also cause blurred vision or confusion. Sleep aids can be particularly risky for elders, and psychotropic medications require careful monitoring. Not all side effects are obvious; be sure that you and your loved one are fully aware of associated fall risks for all his medications—and arrange for extra help, as needed. Be especially careful to monitor side effects when your loved one starts any new meds.
  4. Illuminate hallways, stairs and walkways. A simple nightlight can help prevent a fall on the way to the bathroom. Motion sensors for both nightlights and outdoor lighting around stairs and walkways can provide needed illumination without driving up electric bills.
  5. Have regular eye check-ups. Blurred vision accounts for falls, as well. Be sure that your loved one has appropriate, up-to-date eyeglasses and annual ophthalmologist appointments to evaluate her for glaucoma and cataracts.
  6. Use a medical alert device. A variety of devices worn as pendants or bracelets contact emergency support if the wearer falls. Smartphones are not really a substitute; your loved one might not be carrying his phone at all times, or he could drop it if he falls. Worse, if he loses consciousness from a fall, a smartphone is useless. Make sure your loved one actually wears the device!
  7. Exercise for strength, flexibility and balance. This is probably the most important factor: fight the urge to become sedentary with age. The more we move, the greater our ability to retain strength, flexibility and good reflexes in case of lost balance. Strength workouts help to maintain bone mass. Exercises such as Pilates, yoga and t’ai chi improve core strength and balance. Walking outdoors on an even surface revives energy and mental clarity. Even a few minutes a day standing on one foot can make a difference. Consider arranging a session or two with a physical therapist or personal trainer to put together a realistic exercise program for your loved one.

President of Deborah Fins Associates, PC , since 1995, Deborah Liss Fins is a licensed independent clinical social worker and certified Aging Life Care™ manager. Drawing on more than 30 years of professional experience in aging life care management, DFA offers comprehensive assessments and planning, guidance in selecting appropriate care, help identifying resources for financial support and professional consulting. Please contact us to set up a complimentary initial telephone consultation.

For more on coping with aging, follow us on Twitter: @DeborahFinsALCM.

Image Credit: James Sutton

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